Do disabled adolescents view themselves differently from other young people?

Lars Grue; Arvid Heiberg

doi:10.1080/15017410009510751

Research

Do disabled adolescents view themselves differently from other young people?

Authors:

Lars Grue ,

About Lars

Lars Grue is a senior research fellow at Norwegian Social Research (NOVA). He holds a Ph.d. in sociology. He has for several years, both as a researcher and as a member of The Norwegian State Council on Disability, dealt with issues on disability. Lars Grue is born in 1947.

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Arvid Heiberg

About Arvid

Arvid Heiberg is head of the Department of Medical Genetics, Rikshospitalet, 0027 Oslo, Norway. Arvid Heiberg is a specialist in medical genetics and internal medicine. He was the former director of Frambu - Centre for rare Disabilities, where part of the respondees were recruited. Arvid Heiberg is a medical doctor and holds a Ph.d. He is born in 1937.

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Abstract

Viewing physical disability as a stigma, quite a few articles have over the years dealt with issues relating to the self‐concept of adolescents with physical disabilities. Using the political guidelines stressing social integration and participation for people with disabilities as a starting point this article focuses on how indicators of social integration can explain variation in the self‐concept among adolescents aged 13–20. The analysis shows that there are small differences in self‐concept between disabled and non‐disabled adolescents. The analysis reveals however that parental behaviour is of significant greater importance for the self‐concept of disabled than for non‐disabled adolescents. Towards the end of the article the provoking question is asked if parents may serve as “gatekeepers” for social participation for adolescents with disabilities thus contributing to continuing segregation and stigmatisation.

How to Cite: Grue, L. & Heiberg, A., (2009). Do disabled adolescents view themselves differently from other young people?. Scandinavian Journal of Disability Research. 2(1), pp.39–57. DOI: http://doi.org/10.1080/15017410009510751

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Published on 08 Jul 2009

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CC BY 4.0

References

Allan , J. (1996). . Foucault and Special Education Needs: a’ box of tools’ for analysing children's experience of mainstreaming. . Disability and Society , 11((2)): : 219.–.
Appelton , P.L. , Minchom , P.E. , Ellis , N.C. , Ellieot , C. , Boll , V. and Jones , P. (1994). . The self‐concept of young people with spina bifida: A population based study. . Developmental Medicine and Child Neurology , 36: : 198.–.
Arnold , P. and Chapman , M. (1992). . Self‐esteem aspirations and expectations of adolescents with physical disabilities. . Developmental Medicine and Child Neurology , 34: : 97.–.
Asher , H.B. (1976). . Causal Modeling. , Sage University Paper 3[city: London]: : Sage Publications Ltd.. .
Barnes , C. (1996). . “Theories of disability and the origins of the oppression of disabled people in western society. ”. In Disability and Society: Emerging Issues and Insights. , Edited by: Barton , L. [city: London]: : Longman. .
Blum , R. , Resnick , M. Nelson , R. (1991). . Family and peer issues among adolescents with spina bifida and cerebral palsy. . Pediatrics , 88: : 280.
Booth , T. (1991). . Integration, disability and commitment: a response to Mårten Søder. . Euoropean Journal of Special Needs Education , 6((1)): : 1.–.
Bracken , B.A. (1996). , ed. . Handbook of Self‐Concept. , [city: New York]: : John Wiley & Sons Inc.. .
Coppersmith , S. (1967). . The antecendents of self‐esteem. , [city: San Francisco]: : W.H. Freeman. .
Crow , Liz . (1996). . . “Including All of Our Lives: renewing the social model of disability. ”. In Exploring the Divide. , Edited by: Barnes , C. and Mercer , F. [city: Leeds]: : The Disability Press. .
Eckart , M.L. (1988). . Correlates of Self‐Esteem in Adolescents with Spina Bifida. , University of Cincinnati. . PhD. Dissertation.
Entwistle , D.R. (1993). . “Schools and adolescents. ”. In At the Threshold. The developing adolescent. , Edited by: Feldman , S. Shirley and Elliot , G.R. [city: Cambridge]: : Havard University Press. .
Franzoi , D.C. and Davis , M.H. (1985). . Adolescents Self‐Disclosure and Loneliness: Private Self‐Consciousness and Parental Influences. . Journal of Personality and Social Psychology , 483((3)): : 768.–.
Glaser , H.H. , Harrison , G.S. and Lynn , D.B. (1964). . Emotional implications of congenital heart disease in children. . Pediatrics , 33: : 367.–.
Grue , L. (1998). . På terskelen. , [city: Oslo]: : Norwegian Social Research (NOVA). . (On the threshold). Doctoral dissertation.
Harter , S. (1985). . The Self‐Perception Profile for Children: Revision of the Perceived Competence Scale for Children. , University of Denver. . Manual.
Harter , S. (1986). . “Process underlying the construct, maintenance and enhancement of the self‐concept in children. ”. In Psychological Perspectives on the self. , Edited by: Suls , J. and Greenwald , A. [city: Hillsdale], [state: NJ]: : Lawrence Erlbaum. .
Harter , S. (1987). . “The determinants and mediational role of global self‐worth in children. ”. In Contemporary Issues in Developmental Psychology. , Edited by: Eisenberg , N. [city: New York]: : Wiley & Sons Inc.. .
Harter , S. (1988). . Manual for the Self‐Perception profile for Adolescents. , University of Denver. . Manual.
Harter , S. (1990). . “Causes, Correlates, and the Functional Role of Global Self‐Worth: A Life‐Span Perspective. ”. In Perceptions of Competence and Incompetence Across the Life‐Span. , Edited by: Kollogian , I J. and Sternberg , R. [city: New Haven]: : Yale University Press. .
Harter , S. (1993). . “Self and Identity Development. ”. In At The Threshold ‐ The Developing Adolescent. , Edited by: Feldman , S. Shirley and Elliot , Glen R. [city: Cambridge]: : Harvard University Press. .
Harter , S. , Marold , D.B. , Whitesell , N.R. and Cobbs , N. (1996). . A Model of Effects of Perceived Parent and Peer Support on Adolescent False Self Behaviour. . Child Development , 67: : 360.–.
Harter , S. , Bresnick , S. , Bouchey , H.A. and Whitesell , N.R. (1997). . The development of multiple role‐related selves during adolescence. . Development and Psycho‐pathology , 9: : 835.–.
Harter , S. , Waters , P. and Whitesell , N.R. (1998). . Relational Self‐Worth: Differences in Perveived Worth as a Person across Interpersonal Contexts among Adolescents. . Child Development , 69((3)): : 360.–.
Harvey , D.H.P. and Greenway , A.P. (1984). . The self‐concept of physically handicapped children and their nonhandicapped siblings: An empirical investigation. . Journal of Child Psychology and Psychiatry , 25: : 273.–.
King , G.A. , Schultz , I.Z. , Steel , K. , Gilpin , H. and Cathers , T. (1993). . Self‐evaluation and self‐concept of adolescents with physical disabilities. . American Journal of Occupational Therapy , 47: : 132.–.
Lawrence , B. (1991). . Self‐Concept formation and physical handicap: Some implications for integration. . Disability, Handicap & Society , 6((2)): : 139.–.
Lie , H. (1993). . Disability and Coping. A cross‐sectional study of Nordic children with myelomeningocele. , Lund University. . Doctoral dissertation.
Marsh , H.W. (1987). . The hierarchical structure of self‐concept and the application of hierarchical confirmatory factor analysis. . Journal of Educational Measurement , 24: : 17.–.
Mullener , N. and Laird , J.D. (1971). . Some developmental changes in the organization of self‐evaluations. . Developmental Psychology , 5: : 233.–.
Oliver , M. (1990). . The Politics of Disablement. , [city: London]: : MacMillan. .
Oliver , M. (1996). . Understanding Disability ‐from theory to practice. , [city: New York]: : St. Martin's Press. .
Paternoster , Raymond . (1998). . . Using the Correct Statistical Test for the Equality of Regression Coefficients. . Criminology , 36((4)): : 859.–.
Parker , G. , Tupling , H. and Brown , L., B. (1979). . A Parental Bonding Instrument. . British Journal of Medical Psychology , 52: : 1.–.
Piers , E.V. (1977). . The Piers‐Harris children's self‐concept scale. , Research Monograph No. 1[city: Nashville], [state: TN]: : Counselor Recordings and Tests. .
Pinder , Ruth . (1995). . . Bringing back the body without blame? The experience of ill and disabled people at work. . Sociology of Health & Illness , 17((5)): : 605.–.
Priestley , M. (1999). . “Discourse and identity: disabled children in mainstream highschools. ”. In Disability Discourse. , Edited by: Corker , M. and French , S. [city: Buckingham]: : Open University Press. .
Resnick , MD. , Harris , L. and Blum , RW (1992). . Risk and protective factors in adolescent emotional well‐being. . Paper presented at the annual meeting of the Society for Adolescent medicine. . 1992, , [city: Washington DC].
Rosenberg , M. (1979). . Conceiving the self. , [city: New York]: : Basic Books. .
Schechter , M.D. (1961). . The orthopaedically handicapped child: Emotional reactions. . Archives of General Psychiatry , 4: : 247.–.
Shakespeare , T. (1996). . “Disability, Identity, Difference. ”. In Exploring the Divide. , Edited by: Barnes , C. and Mercer , G. [city: Leeds]: : The Disability Press. .
Sherill , C. (1990). . Self‐Concept of disabled athletes. . Perceptual & Motor Skills , 70((3)): : 1093.–.
Specht , J.A. , King , G.A. and Francis , P.V. (1998). . A preliminary study of strategies for maintaining self‐esteem in adolescents with physical disabilities. . Canadian Journal of Rehabilitation , 11((3)): : 109.–.
Stevens , E.M. , Steele , C.A. , Jutai , J.W. and Kalnins , I.L. (1996). . Adolescents with physical disabilities: Some psychological aspects of health. . Journal of Adolescent Health , 19((2)): : 157.–.
Søder , M (1990). . . Disability as a social construct. The labelling approach revisited. . Journal of Special Needs Education , 4((2)): : 117.–.
Varni , J.W , Rubenfeld , L.A. , Talbot , D. and Setogutchi , Y. (1989). . Determinants of self‐esteem in childhood with congenital/acquired limb deficiencies. . Developmental and Behavioural Pediatrics , 14: : 13.–.
Wickstrøm , L. (1995). . Harter's Self‐Perception Profile for Adolescents: Reliability, Validity and Evaluation of the Question Format. . Journal of Personality Assessment , 65((1)): : 100.–.

[CIT0001] Allan , J. (1996). . Foucault and Special Education Needs: a’ box of tools’ for analysing children's experience of mainstreaming. . Disability and Society , 11((2)): : 219.–.

[CIT0002] Appelton , P.L. , Minchom , P.E. , Ellis , N.C. , Ellieot , C. , Boll , V. and Jones , P. (1994). . The self‐concept of young people with spina bifida: A population based study. . Developmental Medicine and Child Neurology , 36: : 198.–.

[CIT0003] Arnold , P. and Chapman , M. (1992). . Self‐esteem aspirations and expectations of adolescents with physical disabilities. . Developmental Medicine and Child Neurology , 34: : 97.–.

[CIT0004] Asher , H.B. (1976). . Causal Modeling. , Sage University Paper 3[city: London]: : Sage Publications Ltd.. .

[CIT0005] Barnes , C. (1996). . “Theories of disability and the origins of the oppression of disabled people in western society. ”. In Disability and Society: Emerging Issues and Insights. , Edited by: Barton , L. [city: London]: : Longman. .

[CIT0006] Blum , R. , Resnick , M. Nelson , R. (1991). . Family and peer issues among adolescents with spina bifida and cerebral palsy. . Pediatrics , 88: : 280.

[CIT0007] Booth , T. (1991). . Integration, disability and commitment: a response to Mårten Søder. . Euoropean Journal of Special Needs Education , 6((1)): : 1.–.

[CIT0008] Bracken , B.A. (1996). , ed. . Handbook of Self‐Concept. , [city: New York]: : John Wiley & Sons Inc.. .

[CIT0009] Coppersmith , S. (1967). . The antecendents of self‐esteem. , [city: San Francisco]: : W.H. Freeman. .

[CIT0010] Crow , Liz . (1996). . . “Including All of Our Lives: renewing the social model of disability. ”. In Exploring the Divide. , Edited by: Barnes , C. and Mercer , F. [city: Leeds]: : The Disability Press. .

[CIT0011] Eckart , M.L. (1988). . Correlates of Self‐Esteem in Adolescents with Spina Bifida. , University of Cincinnati. . PhD. Dissertation.

[CIT0012] Entwistle , D.R. (1993). . “Schools and adolescents. ”. In At the Threshold. The developing adolescent. , Edited by: Feldman , S. Shirley and Elliot , G.R. [city: Cambridge]: : Havard University Press. .

[CIT0013] Franzoi , D.C. and Davis , M.H. (1985). . Adolescents Self‐Disclosure and Loneliness: Private Self‐Consciousness and Parental Influences. . Journal of Personality and Social Psychology , 483((3)): : 768.–.

[CIT0014] Glaser , H.H. , Harrison , G.S. and Lynn , D.B. (1964). . Emotional implications of congenital heart disease in children. . Pediatrics , 33: : 367.–.

[CIT0015] Grue , L. (1998). . På terskelen. , [city: Oslo]: : Norwegian Social Research (NOVA). . (On the threshold). Doctoral dissertation.

[CIT0016] Harter , S. (1985). . The Self‐Perception Profile for Children: Revision of the Perceived Competence Scale for Children. , University of Denver. . Manual.

[CIT0017] Harter , S. (1986). . “Process underlying the construct, maintenance and enhancement of the self‐concept in children. ”. In Psychological Perspectives on the self. , Edited by: Suls , J. and Greenwald , A. [city: Hillsdale], [state: NJ]: : Lawrence Erlbaum. .

[CIT0018] Harter , S. (1987). . “The determinants and mediational role of global self‐worth in children. ”. In Contemporary Issues in Developmental Psychology. , Edited by: Eisenberg , N. [city: New York]: : Wiley & Sons Inc.. .

[CIT0019] Harter , S. (1988). . Manual for the Self‐Perception profile for Adolescents. , University of Denver. . Manual.

[CIT0020] Harter , S. (1990). . “Causes, Correlates, and the Functional Role of Global Self‐Worth: A Life‐Span Perspective. ”. In Perceptions of Competence and Incompetence Across the Life‐Span. , Edited by: Kollogian , I J. and Sternberg , R. [city: New Haven]: : Yale University Press. .

[CIT0021] Harter , S. (1993). . “Self and Identity Development. ”. In At The Threshold ‐ The Developing Adolescent. , Edited by: Feldman , S. Shirley and Elliot , Glen R. [city: Cambridge]: : Harvard University Press. .

[CIT0022] Harter , S. , Marold , D.B. , Whitesell , N.R. and Cobbs , N. (1996). . A Model of Effects of Perceived Parent and Peer Support on Adolescent False Self Behaviour. . Child Development , 67: : 360.–.

[CIT0023] Harter , S. , Bresnick , S. , Bouchey , H.A. and Whitesell , N.R. (1997). . The development of multiple role‐related selves during adolescence. . Development and Psycho‐pathology , 9: : 835.–.

[CIT0024] Harter , S. , Waters , P. and Whitesell , N.R. (1998). . Relational Self‐Worth: Differences in Perveived Worth as a Person across Interpersonal Contexts among Adolescents. . Child Development , 69((3)): : 360.–.

[CIT0025] Harvey , D.H.P. and Greenway , A.P. (1984). . The self‐concept of physically handicapped children and their nonhandicapped siblings: An empirical investigation. . Journal of Child Psychology and Psychiatry , 25: : 273.–.

[CIT0026] King , G.A. , Schultz , I.Z. , Steel , K. , Gilpin , H. and Cathers , T. (1993). . Self‐evaluation and self‐concept of adolescents with physical disabilities. . American Journal of Occupational Therapy , 47: : 132.–.

[CIT0027] Lawrence , B. (1991). . Self‐Concept formation and physical handicap: Some implications for integration. . Disability, Handicap & Society , 6((2)): : 139.–.

[CIT0028] Lie , H. (1993). . Disability and Coping. A cross‐sectional study of Nordic children with myelomeningocele. , Lund University. . Doctoral dissertation.

[CIT0029] Marsh , H.W. (1987). . The hierarchical structure of self‐concept and the application of hierarchical confirmatory factor analysis. . Journal of Educational Measurement , 24: : 17.–.

[CIT0030] Mullener , N. and Laird , J.D. (1971). . Some developmental changes in the organization of self‐evaluations. . Developmental Psychology , 5: : 233.–.

[CIT0031] Oliver , M. (1990). . The Politics of Disablement. , [city: London]: : MacMillan. .

[CIT0032] Oliver , M. (1996). . Understanding Disability ‐from theory to practice. , [city: New York]: : St. Martin's Press. .

[CIT0033] Paternoster , Raymond . (1998). . . Using the Correct Statistical Test for the Equality of Regression Coefficients. . Criminology , 36((4)): : 859.–.

[CIT0034] Parker , G. , Tupling , H. and Brown , L., B. (1979). . A Parental Bonding Instrument. . British Journal of Medical Psychology , 52: : 1.–.

[CIT0035] Piers , E.V. (1977). . The Piers‐Harris children's self‐concept scale. , Research Monograph No. 1[city: Nashville], [state: TN]: : Counselor Recordings and Tests. .

[CIT0036] Pinder , Ruth . (1995). . . Bringing back the body without blame? The experience of ill and disabled people at work. . Sociology of Health & Illness , 17((5)): : 605.–.

[CIT0037] Priestley , M. (1999). . “Discourse and identity: disabled children in mainstream highschools. ”. In Disability Discourse. , Edited by: Corker , M. and French , S. [city: Buckingham]: : Open University Press. .

[CIT0038] Resnick , MD. , Harris , L. and Blum , RW (1992). . Risk and protective factors in adolescent emotional well‐being. . Paper presented at the annual meeting of the Society for Adolescent medicine. . 1992, , [city: Washington DC].

[CIT0039] Rosenberg , M. (1979). . Conceiving the self. , [city: New York]: : Basic Books. .

[CIT0040] Schechter , M.D. (1961). . The orthopaedically handicapped child: Emotional reactions. . Archives of General Psychiatry , 4: : 247.–.

[CIT0041] Shakespeare , T. (1996). . “Disability, Identity, Difference. ”. In Exploring the Divide. , Edited by: Barnes , C. and Mercer , G. [city: Leeds]: : The Disability Press. .

[CIT0042] Sherill , C. (1990). . Self‐Concept of disabled athletes. . Perceptual & Motor Skills , 70((3)): : 1093.–.

[CIT0043] Specht , J.A. , King , G.A. and Francis , P.V. (1998). . A preliminary study of strategies for maintaining self‐esteem in adolescents with physical disabilities. . Canadian Journal of Rehabilitation , 11((3)): : 109.–.

[CIT0044] Stevens , E.M. , Steele , C.A. , Jutai , J.W. and Kalnins , I.L. (1996). . Adolescents with physical disabilities: Some psychological aspects of health. . Journal of Adolescent Health , 19((2)): : 157.–.

[CIT0045] Søder , M (1990). . . Disability as a social construct. The labelling approach revisited. . Journal of Special Needs Education , 4((2)): : 117.–.

[CIT0046] Varni , J.W , Rubenfeld , L.A. , Talbot , D. and Setogutchi , Y. (1989). . Determinants of self‐esteem in childhood with congenital/acquired limb deficiencies. . Developmental and Behavioural Pediatrics , 14: : 13.–.

[CIT0047] Wickstrøm , L. (1995). . Harter's Self‐Perception Profile for Adolescents: Reliability, Validity and Evaluation of the Question Format. . Journal of Personality Assessment , 65((1)): : 100.–.

Reading: Do disabled adolescents view themselves differently from other young people?

Research

Do disabled adolescents view themselves differently from other young people?

Authors:

Lars Grue ,

About Lars

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Arvid Heiberg

About Arvid

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References