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    Reading: Parents’ coping with their child’s asthma

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    Research

    Parents’ coping with their child’s asthma

    Authors:

    Lotta Dellve ,

    University of Goteborg and the Nordic School of Public Health in Göteborg, Sweden, SE
    About Lotta

    Lotta Dellve, R.N., MScPH and doctoral student at University of Goteborg and the Nordic School of Public Health in Göteborg, Sweden. Her MScPHthesis (2000) was titled “Coping with childhood disability. Parents’ and female siblings’ experiences. Research interests concern childhood disability in a family perspective and occupational health in caring occupations.

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    Kjell Reichenberg,

    Doctoral student at the Nordic School of Public Health in Göoteborg, Sweden, SE
    About Kjell

    Kjell Reichenberg, MD, is a doctoral student at the Nordic School of Public Health in Göoteborg, Sweden. His thesis will be on quality of lifein childhood asthma. He works clinically with applying the Family Systems Medicine approach in asthma medical care.

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    Lillemor R-M Hallberg

    Nordic School of Public Health in Göteborg, Sweden, SE
    About Lillemor R-M

    Lillemor R-M Hallberg, is a professor in public health at the Nordic School of Public Health in Göteborg, Sweden. Professor Hallberg, who is also an associate professor in psychology, took her doctoral degree in psychology 1992 with a dissertation titled “Hearing impairment, coping and perceived handicap in middleaged individuals with aquired hearing loss: an interactional perspective”. Professor Hallbergs two main research areas concern hearing impairment and chronic pain

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    Abstract

    The aim of this qualitative study was to understand and explore parents’ experiences of coping with their child's asthma, contextually important mechanisms for coping and parents’ ascribed meaning to their coping strategies. Twenty‐six parents (11 fathers) were interviewed individually (6 subjects) or as a couple. The taped interviews were transcribed verbatim and analysed in line with the grounded theory tradition. Two core categories, describing contextual focus of parental coping with asthma, were identified in the data. These core concepts, “cognitive control” and “locus of confidence in caring”, formed a typology of parental coping with asthma. Combinations of variations in these core concepts were related to six qualitatively different parental coping strategies: “problem‐solving”, “avoiding‐assuring”, “reducing”, “relying on self, “complying” and “enduring”. The core concept “chaos in caring” described the experienced stress in caring for the child's asthma. Six additional categories were related to this core concept: parents’ experience of “lack of control”, “incompetence in caring”, “disease‐focusing”, “existential fear”, “closeness” and “uncertainty due to a non‐understanding environment”. The result gives a deeper understanding of the experienced meaning and context related to parents’ coping efforts and might be of importance in developing and evaluating family therapy/ rehabilitation programs
    How to Cite: Dellve, L., Reichenberg, K. & Hallberg, L.R.-M., (2009). Parents’ coping with their child’s asthma. Scandinavian Journal of Disability Research. 2(2), pp.100–113. DOI: http://doi.org/10.1080/15017410009510762
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      Published on 08 Jul 2009
    Peer Reviewed
     CC BY 4.0

    References

    1. Brook , U and Shemesh , A (1996). . . Parental attitude and role perception in families of asthmatic children. . Padiatrie und Grenzgebiete , 30: : 253.–.  

    2. Cohen , MS (1999). . . Families Coping with Childhood Chronic Illness: A Research Review. . Family Systems & Health , 17: : 149.–.  

    3. Doherty , WJ and Baird , MA (1986). . . Developmental levels in family‐centered medical care. . Family Medicine , 18: : 153.–.  

    4. Folkman , S. (1997). . Positive psychological states and coping with severe stress. . Social Science and Medicine , 45: : 1207.–.  

    5. Glaser , B and Strauss , A (1967). . . The discovery of grounded theory: Strategies for qualitative research. , [city: Chicago]: : Aldine. .  

    6. Glaser , B (1978). . . Theoretical sensitivity. Advances in the Methodology of Grounded Theory. , [city: Mill Valley], [state: CA]: : Sociology Press. .  

    7. Godding , V , Kruth , M and Jamart , J (1997). . . Joint consultation for high‐risk asthmatic children and their families, with pediatrician and child psychiatrist as co‐therapists: model and evaluation. . Family Process , 36: : 265.–.  

    8. Gustafsson , PA , Bjorkstén , B and Kjellman , NI (1994). . . Family dysfunction in asthma: a prospective study of illness development. . Journal of Pediatrics , 125: : 493.–.  

    9. Jerrett , MD and Costello , EA (1996). . . Gaining control: parents’ experiences of accommodating children's asthma. . Clinical Nursing Research , 5: : 294.–.  

    10. Jerrett , MD (1994). . . Parent's experience of coming to know the care of a chronically ill child. . Journal of Advanced Nursing , 19: : 1050.–.  

    11. Lazarus , RS (1993). . . Coping theory and research: past, present, and future. . Psychosomatic Medicine , 55: : 234.–.  

    12. Lenney , W , Wells , NEJ and O'Neill , BA (1994). . . The burden of paediatric asthma. . European Respiratory Review , 4: : 49.–.  

    13. Liebman , R , Minuchin , S and Baker , L (1974). . . The use of structural family therapy in the treatment of intractable asthma. . American Journal of Psychiatry , 131: : 535.–.  

    14. MacDonald , H (1996). . . “Mastering uncertainty”: mothering the child with asthma. . Pediatric Nursing , 22: : 55.–.  

    15. Meijer , AM , Griffioen , RW , van Nierop , JC and Oppenheimer , L (1995). . . Intractable or uncontrolled asthma: psychosocial factors. . Journal of Asthma , 32: : 265.–.  

    16. Meijer , AM and Oppenheimer , L (1995). . . The excitation‐adaptation model of pediatric chronic illness. . Family Process , 34: : 441.–.  

    17. Mesters , I , Pieterse , M and Meertens , R (1991). . . Pediatric asthma, a qualitative and quantitative approach to needs assessment. . Patient Education and Counseling , 17: : 23.–.  

    18. Miller , BD and Wood , BL (1991). . . Childhood asthma in interaction with family, school and peer systems: a developmental model for primary care. . Journal of Asthma , 28: : 405.–.  

    19. Minuchin , S , Rosman , BL and Baker , L (1978). . . Psychosomatic families. , [city: Cambridge], [state: MA]: : Harvard University Press. .  

    20. Onnis , L , Tortolani , D and Cancrini , L (1986). . . Systemic research on chronicity factors in infantile asthma. . Family Process , 25: : 107.–.  

    21. Onnis , L (1993). . . Psychosomatic medicine: toward a new epistemology. . Family Systems Medicine , 11: : 137.–.  

    22. Peri , PG , Molinari , E and Taverna , A (1991). . . Parental perceptions of childhood illness. . Journal of Asthma , 28: : 91.–.  

    23. Sears , MR (1997). . . Descriptive epidemiology of asthma. . Lancet , 350((Suppl 2)): : SII1.–.  

    24. Somerfield , M R. (1997). . The utility of systems models of stress and coping for applied research. The case of cancer adaptation. . Journal of Health Psychology , 2: : 133.–.  

    25. Spykerboer , JE , Donnelly , WJ and Thong , YH (1986). . . Parental knowledge and misconceptions about asthma: a controlled study. . Social Science & Medicine , 22: : 553.–.  

    26. Starrin , B (2000). . . “Empowerment och funktionshinder (Empowerment and disability). ”. In Ett liv som andra. , Edited by: Bruse , P and Hydén , L‐C  . [city: Lund]: : Studentlitteratur. .  

    27. Strauss , A and Corbin , J (1991). . . Basics of qualitative research: grounded theory procedures and techniques. , [city: Newbury Park], [state: California]: : Sage. .  

    28. The International Study of Asthma and Allergies in Childhood (ISAAC) Steering Committee (1998). . . Worldwide variation in prevalence of symptoms of asthma, allergic rhinoconjunctivitis, and atopic eczema: ISAAC. . Lancet , 351: : 1225.–.  

    29. Thorne , SE and Robinson , CA (1988). . . Reciprocal trust in health care relationships. . Journal of Advanced Nursing , 13: : 782.–.  

    30. Towns , A (1994). . . Asthma, power, and the therapeutic conversation. . Family Process , 33: : 161.–.  

    31. Weinstein , AG , Chenkin , C and Faust , D (1997). . . Caring for the severely asthmatic child and family. I. The rationale for family systems integrated medical/psychological treatment. . Journal of Asthma , 34: : 345.–.  

    32. Weiss , KB and Sullivan , SD (1994). . . Socio‐economic burden of asthma, allergy, and other atopic illnesses. . Pediatric Allergy and Immunology , 5((6 Suppl)): : 7.–.  

    33. Wilson , SR , Mitchell , JH , Rolnick , S and Fish , L (1993). . . Effective and ineffective management behaviors of parents of infants and young children with asthma. . Journal of Pediatric Psychology , 18: : 63.–.  

    Dellve, L., Reichenberg, K. & Hallberg, L.R.-M., (2009). Parents’ coping with their child’s asthma. Scandinavian Journal of Disability Research. 2(2), pp.100–113. DOI: http://doi.org/10.1080/15017410009510762

    Dellve L, Reichenberg K, Hallberg LR-M. Parents’ coping with their child’s asthma. Scandinavian Journal of Disability Research. 2009;2(2):100–13. DOI: http://doi.org/10.1080/15017410009510762

    Dellve, L., Reichenberg, K., & Hallberg, L. R.-M. (2009). Parents’ coping with their child’s asthma. Scandinavian Journal of Disability Research, 2(2), 100–113. DOI: http://doi.org/10.1080/15017410009510762

    Dellve, Lotta, Kjell Reichenberg, and Lillemor R-M Hallberg. 2009. Parents’ coping with their child’s asthma 2, no. 2: 100–113. DOI: http://doi.org/10.1080/15017410009510762

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