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    Research

    “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability

    Authors:

    Lyn Harrison ,

    Faculty of Education at Deakin University, Geelong, Victoria, Australia, AU
    About Lyn

    Dr Lyn Harrison is a Lecturer in Health Education in the Faculty of Education at Deakin University, Geelong, Victoria, Australia. Her research interests include gender, sexuality, health education and students at educational risk.

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    Kelley Johnson,

    About Kelley

    Dr Kelly Johnson has been involved in research on intellectual disability for fifteen years and has authored several books in the field.

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    Lynne Hillier,

    Australian Research Centre in Sex, Health and Society at La Trobe University, Carlton, Victoria, Australia, AU
    About Lynne

    Dr Lynne Hillier is currently a Postdoctoral Research Fellow with the Australian Research Centre in Sex, Health and Society at La Trobe University, Carlton, Victoria, Australia. Her research is focussed on sexuality issues for marginalized groups.

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    Ria Strong

    About Ria

    Ms Ria Strong is an activist in the area of Acquired Brain Injury and disability and has been involved in several research projects focused on the rights of people with an intellectual disability.

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    Abstract

    Undertaking participatory research with people with intellectual disabilities is becoming a much‐discussed issue. Some researchers and self‐advocates argue strongly that only participatory research can produce useful, honest research which assists people with intellectual disabilities to attain their rights. Others question whether such research is possible or indeed desirable. This paper describes a three‐year action research project which sought to carry out participatory research on the sensitive issue of sexuality. The research grew partly from concerns of people with intellectual disabilities about this issue and involved them in its management and implementation as well as in developing workshops and publications arising from the research. The research process was consciously self reflective and raised questions about participatory research, representation and difference, and the dialectical relationship between individual life histories and institutional change. This paper discusses these issues and the contribution they make to current methodological debates.
    How to Cite: Harrison, L., Johnson, K., Hillier, L. and Strong, R., 2001. “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability. Scandinavian Journal of Disability Research, 3(2), pp.56–70. DOI: http://doi.org/10.1080/15017410109510776
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      Published on 02 Jul 2001
    Peer Reviewed
     CC BY 4.0

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    Harrison, L., Johnson, K., Hillier, L. and Strong, R., 2001. “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability. Scandinavian Journal of Disability Research, 3(2), pp.56–70. DOI: http://doi.org/10.1080/15017410109510776

    Harrison L, Johnson K, Hillier L, Strong R. “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability. Scandinavian Journal of Disability Research. 2001;3(2):56–70. DOI: http://doi.org/10.1080/15017410109510776

    Harrison, L., Johnson, K., Hillier, L., & Strong, R. (2001). “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability. Scandinavian Journal of Disability Research, 3(2), 56–70. DOI: http://doi.org/10.1080/15017410109510776

    1. Harrison L, Johnson K, Hillier L, Strong R. “Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability. Scandinavian Journal of Disability Research. 2001;3(2):56-70. DOI: http://doi.org/10.1080/15017410109510776

    Harrison L and others, ‘“nothing About Us Without Us”: The Ideals and Realities of Participatory Action Research with People with an Intellectual Disability’ (2001) 3 Scandinavian Journal of Disability Research 56 DOI: http://doi.org/10.1080/15017410109510776

    Harrison, Lyn, Kelley Johnson, Lynne Hillier, and Ria Strong. 2001. ““nothing About Us Without Us”: The Ideals and Realities of Participatory Action Research with People with an Intellectual Disability”. Scandinavian Journal of Disability Research 3 (2): 56–70. DOI: http://doi.org/10.1080/15017410109510776

    Harrison, Lyn, Kelley Johnson, Lynne Hillier, and Ria Strong. ““nothing About Us Without Us”: The Ideals and Realities of Participatory Action Research with People with an Intellectual Disability”. Scandinavian Journal of Disability Research 3, no. 2 (2001): 56–70. DOI: http://doi.org/10.1080/15017410109510776

    Harrison, L, et al.. ““Nothing about us without us”: The ideals and realities of participatory action research with people with an intellectual disability”. Scandinavian Journal of Disability Research, vol. 3, no. 2, 2001, pp. 56–70. DOI: http://doi.org/10.1080/15017410109510776

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