Original Articles

Never second best

Authors: {'first_name': 'Anne\xe2\x80\x90Kristine', 'last_name': 'Schanke'}

Abstract

The present study is based upon narrative, life‐history interviews with 20 polio survivors. The study focuses on the forming and reconstruction of identity with the late effects of polio as an important turning point for self‐understanding. In childhood and youth, the identities are described as adjustment‐oriented. The subjects inhabitated a dual world; the internal one, feeling different, and the external world, behaving as non‐disabled. As adults, before the onset of the late effects of polio, they were all somehow in the “normal mainstream”; by confirming important aspects of their normal identity on par with other non‐disabled people by means of marriage, parenthood and paid work. Their admittance to hospitals due to late effects of polio restored polio as an illness, but also enabled the emergence of the personal and emotional voices of the subjects through exchange of mutual awareness with other polio survivors. This appears to contribute to personal growth. The clinical implication from the study is that it is important to focus on the emotional and cognitive impact of early experiences in a narrative perspective in order for survivors to contribute to reconciliation with their life history
Keywords: Article has no keywords
DOI: http://doi.org/10.1080/15017410409512644

References

  1. Antonovsky , A. and Bernstein , J. (1986). . “Patho‐genesis and salutogenesis in war and other crises. Who studies the successful copers?. ”. In Stress and coping in time of war: Generalizations from the Israeli experienc). , Edited by: Milgram , N.A.  : 53.–. [city: New York]: : Brunner/Mazel. .  

  2. Becker , G. (1997). . Disruptive lives. How people create meaning in a chaotic world. , [city: Berkeley and Los Angeles California]: : University of California Press. .  

  3. Bruno , R.J. and Frick , N.M. (1991). . The psychology of polio as prelude to post polio sequelae: Behavior modification and psychotherapy. . Orthopedics , 14: : 1185.–.  

  4. Dahl , H.M. (2000). . Fra kitler til eget tøj‐diskurser om professionalisme, omsorg og køn. (From white coats to own clothes ‐ discourses about professionalism, care and gender.). , [city: Politica]: : Arhus. .  

  5. Davies , B. and Harré , R (1990). . . Positioning the discursive production of selves. . Journal for the Theory of Social Behaviors , 20: : 43.–.  

  6. Fairchild , A.L. (2001). . The polio narratives: dialogues with Franklin Delano Roosevelt. . Bull Hist Med Autumn , 75: : 488.–.  

  7. Froestad , J. and Ravneberg , B. (1991). . Fra veldedighet til rettighet. Historien om Norges Handikapforbund. (From charity to human rights. The history of The Norwegian Association of the Disabled). , [city: Oslo]: : Gjerholm Grafisk. .  

  8. Gawne , A.C. and Halstead , L.S. (1995). . Post‐polio syndrome. Pathophysiology and clinical management. . Critical Reviews in Physical Rehabilitation Medicine , 7: : 147.–.  

  9. Gergen , K.J. and Gergen , M.M. (1988). . Narrative and the self as relationships. . Advances in Experimental Social Psychology , 21: : 17.–.  

  10. Giddens , A. (1991). . Modernity and self‐identity. Self and society in the late modern age. , [city: Cambridge]: : Polity Press. .  

  11. Halstead , L.S. and Grimby , G. (1995). . Post‐polio syndrome. , [city: Philadelphia]: : Hanley & Belfuss. .  

  12. Heckhausen , J. and Schultz , R. (1995). . A life‐span theory of control. . Psychological Review , 102: : 284.–.  

  13. Hermans , H.J.M. (1996). . Voicing the self: From information processing to dialogical interchange. . Psychological Bulletin , 119: : 31.–.  

  14. Hermans , H.J.M. (2001). . The dialogical self: Toward a theory of personal and cultural positioning. . Culture & Psychology , 7: : 243.–.  

  15. Kobasa , S.C. (1979). . Stressful life events, personality and health. . Journal of Personality and Social Psychology , 37: : 1.–.  

  16. Kohut , H. (1977). . The Restoration of the Self. , [city: New York]: : International University Press. .  

  17. Kvale , S. (1997). . Det kvalitative forskningsinteryju. (The qualitative research interview.). , [city: Oslo]: : Ad No‐tam, Gyldendal. .  

  18. Lifton , RJ. (1992). . The protean self. Human resilience in an age of fragmentation. , [city: Chiacago]: : The University of Chicago Press. .  

  19. Lobben , B. (2001). . Polioens historie i Norge. Syk‐dommen, samfunnet ogpasienten. (The history of polio in Norway. The disease, society and the patient.). , [city: Oslo]: : Unipub Press. .  

  20. Mancuso , J.C. and Sarbin , T.R (1983). . . Studies in social identity. , [city: New York]: : Praeger. .  

  21. Marks , D. (1997). . Models of disability. . Disability and Rehabilitation , 19: : 85.–.  

  22. Marks , D. (1999). . Disability. Controversial debates and psychosocial perspectives. , [city: New York]: : Routledge. .  

  23. May , C. and Cooper , A. (1995). . Personal indentity and social change: Some theoretical considerations. . Acta Sociologica , 38: : 75.–.  

  24. Maynard , F.M. and Roller , S. (1991). . Recognizing typical coping styles of polio survivors can improve re‐habilitation. A commentary. . American Journal of Physical Medicine and Rehabilitation , 70: : 70.–.  

  25. McAdams , D.P. (1993). . The stories we live by. Personal myths and the making of the self. , [city: New York]: : William Morrow. .  

  26. Miller , A. (1997). . The drama of being a child. The search for the true self. , [city: London]: : Virago. .  

  27. Mischler , E.G. (1999). . Storyline. Crqftartists’ narratives of identity. , [city: London]: : Harward University Press. .  

  28. Murphy , R.F. , Scheer , J. , Murphy , Y. and Mack , R. (1988). . Physical disability and social liminality: a study in the rituals of adversity. . Social Science and Medicine , 26: : 235.–.  

  29. Olkin , R (1999). . . What psychotherapists should know about disability. , [city: New York]: : The Guilford Press. .  

  30. Orbach , S. (1990). . Gender and dependency in psychotherapy. . Journal of Social Work Practice , 4November 1990: : 1.–.  

  31. Orr , E. and Westman , M (1990). . . “Does hardiness moderate stress and how? A review. ”. In Learned resourcefulnes: On coping skills, self‐control, and adaptive behavior. , Edited by: Rosenbaum , M  . [city: New York]: : Springer. .  

  32. Polkinghorne , D.E. (1988). . Narrative knowing and the human sciences. , [city: Albany]: : State University of New York Press. .  

  33. Polkinghorne , P.E. (1991). . Narrative and self‐concept. . Journal of Narrative and Life History , 1: : 135.–.  

  34. Robinson , H.A. , Finesinger , J.E. and Bierman , J. (1956). . Psychiatric considerations in the adjustment of patients with poliomyelitis. . New England Journal of Medicine , 254: : 975.–.  

  35. Schanke , A.K. (1997). . Psychological distress, social support and coping behavior among polio survivors: a 5 year perspective on 63 polio patients. . Disability and Rehabilitation , 19: : 108.–.  

  36. Schanke , A.K. , Lobben , B. and Øyhaugen , S. (1999). . The Norwegian Polio Study 1994 part II: Early experiences of polio and later psychological well‐being. . Spinal Cord , 37: : 515.–.  

  37. Schanke , A.K. (2001). . Like god som alle andr eeller heist bedre? Beretninger om poliorammede mennensker livshistorie med vekt på hvordan de former sin selvforståelse og sitt handlingsrom. (On a par with other ‐ or even better? Life histories about polio survivors emphasizing how they create their self‐understanding and their room for manoeuvre.). , Report from the project: Aging with a disability[city: Oslo]: : National Center for Dementia. .  

  38. Scheer , J. and Luborsky , M. (1991). . The cultural context of polio biographies. . Orthopedics , 14: : 1183.–.  

  39. Scheibe , K.E. (1986). . “Self‐narratives and adventure. ”. In Narrative psychology: The stories nature of human conduct. , Edited by: Sarbin , T.R.  [city: New York]: : Praeger. .  

  40. Spock , B. (1957). . Baby and Child Care. , [city: New York]: : Meredith Press. .  

  41. Thorsen , K. (1998). . Kjønn, livsløp og alderdom. En studie av livshistorie, selvbilder og modernitet. (Gender, life‐course and old age. A study of life histories, self‐constructions and modernity.). , [city: Bergen]: : Fagbokforlaget. .  

  42. Wekre , L. , Stanghelle , J.K. , Lobben , B. and Øyhaugen , S. (1998). . The Norwegian polio study 1994: A nationwide survey of problems in long‐standing poliomyelitis. . Spinal Cord , 36: : 280.–.  

  43. Wendell , S. (1996). . The rejected body. Feminist philosophical reflections on disability. , [city: New York]: : Routlegde. .  

  44. Westbrook , M. (1996). Early memories of having polio: Survivors'memories versus the official myths. . Paper presented at the First Australian Post‐Polio Conference, Living with the late affects of polio”. . November1996, , [city: Sydney].  

  45. Westbrook , M. and McLlwain , D. (1996). . Living with the late effects of disability: A Five year follow‐up survey of coping among post‐polio survivors. . Australian Occupational Therapy Journal , 43: : 60.–.  

  46. Wilson , D.J. (1994). . Covenants of work and grace: Themes of recovery and redemption in polio narratives. . Lit. Med. , 13: : 22.–.  

  47. Whittaker , E. (1992). . The birth of the anthropological self and its career. . Ethos , 20: : 191.–.  

  48. Winnocot , D.W. (1960). . The theory of parent infant relationship. . International Journal of Psychoanalysis , 41: : 37.–.  

  49. Young , J. (1992). . Changing attitudes towards families of hospitalized children from 1935 to 1975: a case study. . Journal of Advanced Nursing , 17: : 1422.–.  

  50. Zola , I.K. (1988a). . Whose voice is this anyway? A commentary on recent collections about the experience of disability. . Medical Humanities Review , 2: : 6.–.  

  51. Zola , I.K. (1988b). . Ageing and disability: toward a unifying agenda. . Educational Gerontology , 14: : 365.–.