Having a child with a disability can be described as a fundamental transformation and adaptation process for parents, and implications of the child's disability may influence every sphere of family life (Pelchat, Levert, and Bourgeois-Guérin 2009). Cerebral palsy (CP) is the most common neurological disability in childhood with a prevalence of 2.1 per 1000 live births (Andersen et al. 2008). CP is caused by damage to or abnormal development of the infant brain and affects the development of movement and posture, causing activity limitation and motor disability. Concomitant disturbances of sensation, perception, cognition, and communication are common and behaviour problems and seizure disorder may occur (Bax et al. 2005). Most often CP is diagnosed within the child's second year of life (Andersen, Hollung, and Vik 2012).
Parents of children with CP experience elevated levels of stress compared with the general population (Glenn et al. 2009). Lerdal et al. (2013) found levels of stress above normative clinical level in 37.5% of mothers and 23.5% of fathers of preschool children with CP. The stress factors were partly due to the condition of the child, but parental factors such as feeling of incompetence, symptoms of depression, and lack of support from spouse also increased the level of stress.
Optimism has been found to increase resilience to stress in parents (Fayed et al. 2011) and is described as a personal trait, a general expectation that positive outcome will occur (Scheier and Carver 1985). Optimism may function as a moderator and predictor between child problems and parental adjustments (Baker, Blacher, and Olsson 2005; Heinonen et al. 2006). Lowered optimism has been found in parents of children with impairments (Labbé et al. 2002; Fotiadou et al. 2008; Ekas, Lickenbrock, and Whitmann 2010). However, participation in an intensive habilitation programme has been reported to increase optimism among mothers of preschool children with CP (Lerdal et al. 2012).
Optimism is positively associated with caregivers' psychosocial functioning and is found to be a predictor of coping with life challenges in a constructive way (Labbé et al. 2002; Thuen and Rise 2006; Carver, Scheier, and Segerstrom 2010). Sense of coherence (SOC) also seems related to parental coping as the capability to activate and increase resources. SOC is described as an individual global orientation and a relatively stable individual factor developing during adolescence and early adulthood (Antonovsky 2000). The overall issue is the personal capability to view the world as comprehensible, manageable, and meaningful – focusing the ‘salutogenic’ issues in health promotion (Lindstrøm and Eriksson 2006). SOC is also influenced by the surroundings and the society in general (Antonovsky 2000). Norwegian research on macrosocial processes shows that mothers and fathers of children with disabilities take on additional parental roles (Tøssebro, Paulsen, and Wendelborg 2014). They have to be administrators and therapists and at the same time maintain a family situation that is as normal as possible. Our clinical experience is that parents feel overwhelmed by complex health and support systems. A lot of time and energy is spent trying to navigate, understand, and make use of these systems. In addition, they have to relate to and cooperate with a number of health and support professionals.
SOC is strongly related to perceived mental health and is described as a predictor of good health, a mediator in parental well-being (Olsson, Larsman, and Hwang 2008), and a negative predictor of stress (Margalit and Kleitmann 2006). Furthermore, SOC can be seen as a health-promoting resource, which strengthens resilience and leads to a positive subjective state of health (Eriksson and Lindstrøm 2005). Low SOC is found in parents of children with different impairments (Olsson and Hwang 2002; Margalit and Kleitmann 2006; Grøholt, Nordhagen, and Heiberg 2007; Olsson, Larsman, and Hwang 2008; Pisula and Kossakowska 2010; Bergh and Bjørk 2012) and is associated with avoidance, wishful thinking, distraction, and resignation (Pisula and Kossakowska 2010). Parents of children being treated for cancer show a decrease in parental SOC during the time course of treatment. These changes in SOC vary between mothers and fathers (Bergh and Bjørk 2012).
There is a lack in descriptions of caregivers' characteristics for the identification of optimistic parents who cope well and those who are at risk (Raina et al. 2005; Guyard et al. 2011; Krstic and Oros 2012). Little is known about how mothers and fathers of preschool children with CP experience optimism and SOC over time. Thus, the aim of the present study was to describe optimism and SOC in mothers and fathers of preschool children with CP, before and after participation in an intensified habilitation program. We hypothesized increased optimism and SOC in parents after attending the program.
To describe change in parental experienced optimism and SOC, we applied a prospective design in mothers and fathers of CP children participating in a multidimensional habilitation program called program intensified habilitation (PIH). The parents were followed for one year. Data were collected during the period 2007–2011.
The parents completed the questionnaires measuring optimism (Life Orientation Test, LOT) and SOC before and after participation in the PIH. Data regarding parental stress were collected at baseline and post-test, that is, after finishing the programme. In describing data, baseline data were numbered 1 (LOT1, SOC1), and post-test data 2 (LOT2, SOC2).
The intervention was a one-year, intensified, habilitation program for preschool children with CP, their parents and local professionals, given from a multiprofessional team in a child habilitation unit in a hospital in the Health Region of South-Eastern Norway (Sørensen, Vestrheim, and Lerdal 2011). It addresses parents who want to learn more and take a more active role in training and stimulating their child. It is a supplement to the ordinary habilitation services. The intervention (PIH) has a multimodal approach (Figure 1); that is, several interventions are simultaneously applied. During the year in PIH, parents and their child spend four periods of one or two weeks in a hospital setting. In these periods, parents and their child receive intensified habilitation interventions for about six hours each day, and this includes services from physical therapists, occupational therapists, specially educated teachers, paediatricians, and psychologists. In the time in between hospital periods, the interventions are being implemented by local professionals in preschool or by parents at home. The families attend a group but the interventions are individually adjusted. The concept is based on a Family-centred service model (King et al. 2004) as children are addressed through their parents, in addition to being treated directly.
Parental data in the study were gender and clinical stress. Inclusion criteria for children were a CP diagnosis and age between 2 and 4 years. The children represented all Gross Motor Function Classification System (GMFCS) levels from I to V (Palisano et al. 2008). Exclusion criteria were comorbid autism spectrum disorders, extensive visual and/or hearing impairments, and receptive language disorder. At baseline 16 parents had children from 2 years to 2 years and 11 months (2–3 years), 16 parents represented children from 3 years to 3 years and 11 months (3–4 years), while 13 parents participated with children aged 4 years to 4 years and 11 months (4–5 years).
Clinical data for children and parents are presented in Table 1.
|Clinical stress mothers/fathers||9/4|
|Mean age of child (months)||39.4 (9.4)|
|GMFCS level I+II||9|
|GMFCS level III+IV||11|
|GMFCS level V||6|
|Age group child|
|2–3 years (2–2 years 11 months)||9|
|3–4 years (3–3 years 11 months)||8|
|4–5 years (4–4 years 11 months)||9|
LOT is designed to measure individual optimism or optimism as a general expectation that positive outcomes will occur (Scheier and Carver 1985). Previous studies have found acceptable construct and criterion validity, and test–retest reliability (Scheier and Carver 1985; Andersson 1996). LOT includes eight items: four positively and four negatively loaded, and the positive items' scores were reversed. A 4-point Likert-type scale was used (1 = strongly agree to 4 = strongly disagree). Higher scores indicate higher optimism and a total sum score is ranged from 8 to 32 points. Cronbach's alpha in our study reached 0.81.
SOC is designed to measure individual global orientation to view the world as comprehensible, manageable, and meaningful (Antonovsky 2000). More than 15 different versions of the instrument have been described (Eriksson and Lindstrøm 2005). The instrument used in our study contained three items: two positively and one negatively loaded, and the positive items' scores were reversed. The total score was based on a 3-point Likert-type scale (1 = yes, 2 = yes sometimes, 3 = no) with a sum score ranged from 3 to 9 points. Higher score indicated higher SOC. Validity and reliability of the three-item version of SOC is proved acceptable and fairly good (Eriksson and Lindstrøm 2005), but is also found not encouraging (Schumann et al. 2003). Cronbach's alpha in our study reached 0.36.
The degree of parental stress was evaluated with the Parenting Stress Index (PSI) (Abidin and Wilfong 1989). PSI is a commonly used questionnaire to identify areas of stress and burdens in the parent–child relationship. The total score is based on a 5-point Likert-type scale (1 = strongly disagree to 5 = strongly agree) with a sum score ranging from 101 to 502 points. Clinical stress level is defined at the 85th percentile. Scores above the 85th percentile are associated with lower parental quality of life and reduced parent–child interaction skills. The standardized scores and clinical stress level are based on an American sample from the original development of the PSI (Abidin and Wilfong 1989). The Norwegian version of the questionnaire was used. This version has been approved by developers of the original questionnaire and has in previous studies shown satisfactory reliability and validity (Glavin et al. 2010).
Statistical analyses were carried out using the IBM SPSS Statistical Package for Social Science for Windows (version 18). Descriptive statistics were calculated for parent and child characteristics. Independent samples t-tests and one-way ANOVA were used to compare mean values in LOT and SOC between sub-groups, while paired sample t-test was used to compare mean values in LOT and SOC at baseline and post-test. Multiple linear regression analyses were used to assess adjusted (parental gender and age group) changes in LOT and SOC. Furthermore, effect sizes of mean change in LOT and SOC across time were calculated by subtracting the mean LOT and SOC scores at baseline from the mean scores of post-test, and then divided by the SD at baseline. The effect size allows for comparison across dependent variables and was interpreted according to Cohen's effect size index, with 0.2 indicating a small difference, 0.5 a moderate difference, and 0.8 or more a large difference (Cohen, Hillsdale, and Erlbaum 1988). Correlations were used to identify any possible relationships between optimism, SOC, and stress. The strength of relationships was estimated as weak (r = .1–.3), moderate (r = .4–.6), and strong (r = .7–.9) (Dancey and Reidy 2011). To describe within-person change across time and estimate the proportions of parents in the intervention group with clinical changes, we described minimal clinically important difference (improvement or worsening) in LOT and SOC. We identified the parents with modest (5–10%), moderate (10–20%), and substantial change (> 20%) (Fayers and Machin 2007) from baseline to post-test. Internal consistency in the two scales was estimated by Cronbachs’ alpha at baseline. The level of significance was set at 0.05.
The Regional Committee of Medical Ethics and the Data Inspectorate in Southern Norway approved the study protocol. Written informed consent was collected from all parents. The study is registered at the Clinical Trails no. NCT00202761 (Skranes 2005).
Baseline characteristics of the mothers and fathers and children are presented in Table 1. Thirteen out of 29 parents (nearly 45%) reported clinical stress above the 85th percentile at baseline (Abidin and Wilfong 1989). The percentage of mothers above clinical stress level was twice the percentage of fathers.
Mean parental response on LOT was 24.4 (3.9) and on SOC 7.0 (1.3) at baseline. No differences in mean LOT and SOC scores at baseline were found, regarding parents' gender, children's gender, GMFCS levels, or sub-groups of CP diagnosis. However, parents of children with CP in age group 2–3 years experienced lower LOT and SOC mean scores at baseline compared with parents of children between 3 and 4 years (Figure 2). For age group 2–3 years, a parental mean LOT score was 22.8 (4.7) while for age group 3–4 years a mean LOT score was 26.4 (2.4) (p = .021). Parents of age group 2–3 years reported an SOC mean score of 6.5 (1.2), while parents of age group 3–4 years reported a mean SOC score of 7.7 (1.1) (p = .022). No differences in parental mean LOT and SOC scores were found between age group 4–5 years and the two other age groups.
Parents with PSI scores above clinical stress level reported lower mean LOT scores 21.1 (3.8) versus 25.7 (3.1) (p = .001) and lower mean SOC scores 6.1 (1.1) versus 7.3 (1.1), (p = .005) than parents with PSI scores below clinical stress level at baseline (Figure 3).
No significant changes in LOT and SOC mean scores were found between baseline and post-test (Table 2). This was also the case when controlling for parental gender and the age group of the children.
|N||Mean||SD||p||Effect size||Mean change (SD)|
A total of 25 parents reported clinically significant change in LOT score at post-test (14 positive and 11 negative changes) and 16 parents reported clinically significant change in SOC score at post-test (10 positive and 6 negative changes) (Table 3).
|Negative minimal clinically difference||Positive minimal clinically difference|
|> 20%||10–20%||5–10%||5–10%||10–20%||> 20%|
|LOT1 – LOT2 (N = 17)||3||1||1||8||0||2|
|SOC1 – SOC2 (N = 14)||2||0||0||0||0||5|
|LOT1 – LOT2 (N = 12)||3||0||3||2||1||1|
|SOC1 – SOC2 (N = 12)||2||2||0||0||1||4|
Table 3 also shows that 10 (67%) of 15 mothers who reported clinically significant change in LOT changed in a positive direction. In the group of fathers, 4 (40%) of a total of 10 changed in a positive direction.
Strong correlations between scores on SOC, LOT, and parental stress were found for mothers before attending PIH (Table 4). High scores on the LOT and SOC were associated with low scores on the PSI. The same strong correlation was seen for LOT and PSI after PIH participation. Fathers' scores indicated the same relationship, but changed from moderate correlations at pretest to strong correlations at post-test (Table 5).
|Baseline – r(n)||Post-test – r(n)|
|Baseline – r(n)||Post-test – r(n)|
|LOT1||0.48(19) *||−0.54(19) *|
|LOT2||0.79(13) **||−0.70(15) **|
Parents of children aged 2–3 years with CP and those with high stress levels reported reduced optimism and SOC. No statistically significant changes in LOT and SOC scores were found between baseline and post-test. However, among mothers who reported clinically significant changes, 67% reported more optimism after participation in PIH. There was a strong negative correlation between parental stress and LOT and SOC in mothers at baseline and in fathers at post-test.
We found the lowest optimism and SOC in parents of the youngest children with CP. The level of optimism in parents of 2–3-year-old children with CP in our study was comparable to that reported in a study of mothers to autistic children (Ekas, Lickenbrock, and Whitmann 2010) and parents of children with cancer (Fotiadou et al. 2008). The confirmation of the CP diagnosis may indicate a crucial time in parental adaptation. The prognosis and consequences of the development of a child with CP are often unknown at the time of diagnosis. This first period after diagnosis may affect parents' vulnerability, their expectations and coping (Olsson and Hwang 2002). The unclear and changing situation may give parents increased difficulties in choosing among coping strategies and efforts (Lin 2000; Rentinck et al. 2007, 2010). Parents of children with CP may experience greater personal burdens and higher levels of stress, in particular in the child's infancy, and this may be more pronounced in mothers than in fathers (Rentinck et al. 2007). Our findings support the comprehension of excessive parental challenges in this stage of the family life (Rentinck et al. 2010) and the importance of early intervention to support these parents.
In this study, we found no differences in optimism and SOC between the groups of parents of children with CP participating in PIH, neither at baseline nor at post-test. However, lower SOC was found in parents when compared to a German population study (Schumann et al. 2003). Also SOC among mothers and among parents of 2–3-year-old children with CP were lower than comparable groups in this German population study (Schumann et al. 2003). Our findings are supported by previous studies that have found lower SOC among parents of children with cognitive disabilities (Grøholt, Nordhagen, and Heiberg 2007; Olsson, Larsman, and Hwang 2008), among parents of children with autism (Olsson and Hwang 2002; Pisula and Kossakowska 2010), and among parents of children with different types of chronic diseases. Some studies have found a gender difference in SOC between parents (Olsson and Hwang 2002; Olsson, Larsman, and Hwang 2008; Cheshire, Barlow, and Powell 2010), while others found no such difference (Pisula and Kossakowska 2010). Low SOC supports the comprehension that parents caring for a child with neuroimpairments are at greater risk than parents of healthy children. These lower levels may make parents even more vulnerable to experiencing stress (Olsson and Hwang 2002), and stress could worsen the situation further creating a negative circle. It is of importance to find intervention strategies that will contribute to better coping for the families.
Although mean scores on LOT and SOC did not change statistically significant during the intervention period, clinically significant changes were reported in a high proportion of the parents. This may indicate that participation in PIH does affect parents on this dimension. Mothers, more than fathers, reported improved optimism after PIH. Mothers may be more open to PIH (Pelchat, Levert, and Bourgeois-Guérin 2009), or the PIH intervention may be more suitable for mothers than fathers (Lerdal et al. 2012, 2013).
There was a correlation between optimism, SOC, and parenting stress. Strong correlations were found in mothers' scores, before attending PIH. At this point, the same correlations for fathers' scores were moderate. After attending PIH, strong correlations between optimism, SOC, and stress were found in fathers' scores as well. The weaker correlations in fathers' compared to mothers' scores prior to the intervention maintain the comprehension of the traditional family roles (Raina et al. 2005) and in particular the comprehension that the mother is still the main caregiver of the child (Lerdal et al. 2013). After attending PIH, fathers' results resembled those of the mothers to a greater degree. Earlier studies have shown that the fathers' levels of stress are not altered during participation (Lerdal et al. 2012), but our results indicate that parents at least experience the stress and realities of the situation in a more similar way after attending PIH. It is our clinical experience that parents after participation in the programme view their child and the challenges associated with CP in a more similar way. Generally the roles of administrator and home fall on the mother (Tøssebro, Paulsen, and Wendelborg 2014), but in PIH both parents participate and the traditional family roles are set aside. Receiving the same information, experiences and counselling provide parents with a much more similar basis of understanding their child. It is therefore tempting to assume that the parents through participation in PIH have reached a more similar understanding of the realities of caring for their child.
Our results indicate a strong correlation between optimism and stress in mothers. Therefore, we suggest that LOT might be used as a clinical instrument, to find parents in need of intervention to improve their coping with the situation. Optimism may be seen as a more generic factor (Carver, Scheier, and Segerstrom 2010), and more directly connected to change in stress (Lerdal et al. 2012) than SOC (Eriksson and Lindstrøm 2005).
Participation in PIH is voluntary and this may have created selection bias. There were also some dropouts (variation in fulfilling) from baseline to post-test. This might limit the possibility to generalize from our results. The lack of control group including parents of children with CP and identical functional level is another weakness of our study. The main reason for not including such a control group is because it is difficult to identify controls that match both the characteristics of the children with CP and their parents. However, a control group would make our results more reliable. The election of the three-item version of SOC may be criticized and the rather low Cronbach's alpha may be of concern (Schumann et al. 2003). The low Cronbach's alpha underlines results from a previous study finding the three-item version not encouraging (Schumann et al. 2003). The results in our study do not support the responsiveness in LOT and SOC questionnaire to detect changes in life orientation and SOC during an intervention programme. Considerations regarding internal and external validity in this design may also limit the generalization of our results.
To our best knowledge this is the first study reporting optimism and SOC in both mothers and fathers of preschool children with CP before and after attending a non-traditional multidisciplinary treatment programme over a year. Mothers and fathers of children with CP seem to be at increased risk of lower optimism and reduced SOC, especially those with children aged 2–3 years and those with high stress levels at baseline. Our findings may indicate that the PIH programme influences parental experienced optimism and SOC to some extent. Correlations between parental optimism, SOC, and stress suggest that stress reduction may be an approach in targeting optimism at least in mothers. Our findings also showed that fathers' experienced stress level before attending an intensified programme is relatively low and that there is a stronger correlation between stress, optimism, and SOC in fathers after participation. This may be due to a more reality-oriented view of the situation after attending a programme like PIH. Whether these findings also indicate a more permanent change in the parental adaptation processes and change in experienced spousal support was not within the aims of this study and has to be further examined.
We wish to thank all the parents who have participated in this study and our coworkers who have participated in data collection. Further, we thank Are Hugo Pripp at the Unit for Biostatistics and Epidemiology, Oslo University Hospital for help with statistics.
No potential conflict of interest was reported by the authors.
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